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juvenile dermatomyositis, JDMS, pediatric, Julia, diary, myositis, skin rash, muscle weakness, muscle inflammation, prednisone, methotrexate, ivig, solu-medrol

Juvenile Dermatomyositis (JDMS) is a rare childhood auto-immune disease. My daughter, Julia, was diagnosed with JDMS in March of 1998.

This web site is here for two primary reasons. First, to chronicle the events surrounding Julia's diagnosis and treatment of Juvenile Dermatomyositis, thereby helping me cope with it. Second, to give other children and their parents in the same situation some much-needed information and support. Juvenile Dermatomyositis is a very rare disease; I have scoured the internet, bookstores, and libraries and there is precious little on JDMS to be found, and much of that is out of date. I hope that this site will be valuable to you as you learn to cope with it. I'm not a medical professional, so nothing you find here should be considered medical advice.

If you have any questions, please start by visiting the Frequently Asked Questions. If you have feedback or comments, my email address is . Julia would love to hear from you if you have any words of support or advice; her web page is at ralphb.net/juliafb, and her email address is . There's also a feedback form you can use if you prefer.

If you're looking for information and support, I highly recommend you join The CureJM Foundation. There is no finer or more dedicated organization working to find a cure for Juvenile Dermatomyositis.

You can begin reading Julia's Juvenile Dermatomyositis Diary from the beginning now by clicking on this arrow, or use the calendar on the left to jump to the date you want.

Update: Read about Julia's take on her early days with JDMS! She wrote an essay for 9th grade english, which her teacher submitted to a teen writing magazine, Teen Ink. They published her essay in their March, 2006 issue!
Read My Journey by Julia by clicking here

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Copyright notice:
Copyright © 1998-2006, All Rights Reserved, by Ralph Becker < >
This contents of Julia's Juvenile Dermatomyositis (JDMS) Diary web site may be viewed and read by anyone.
There is no limitation on hyper or web links to this site.
NO commercial use or for-profit use is permitted.
NO online reproduction of the contents of this site is permitted.
The contents of this site may not be republished or reproduced in any form, including but not limited to books, magazines, CD-ROMS, CDs, audio tapes, etc.
Readers are permitted to make one hard (printed) copy of the contents per household for personal use only.

Any exceptions to these conditions must have the explicit permission of the author.
Any use not listed here requires the explicit permission of the author.

Updated April 28, 2006
Copyright © 1998-2006 by Ralph Becker < >
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